Six month old Jeremy Becker has been diagnosed with a rare and terminal disease. KrabbeÕs Disease affects 1 in every 100 000 births and there is no cure. The disease itself is an error in the genes that does not allow for proper nerve development in the brain. In KrabbeÕs Disease the sheath that surrounds each nerve is not forming properly, thereby not allowing a full and proper message to be carried to other nerves.
In the later stages, children can lose eyesight, hearing and experience paralysis. The brain stops functioning properly and shuts down, leading to death. Young Jeremy has been given only a few months to live.
Beginning the 30th of June, 2005 Andrew Stace will be kayaking down the River Murray from the S.A. / N.S.W border to where it ends at the Murray Mouth some 650km away. Taking just over 2 weeks he will be visiting towns along the way to raise much needed awareness and money for the Paediatric Palliative Care Service based at the WomenÕs and ChildrenÕs Hospital. At present the service provides medical, emotional and spiritual support to over 30 metro and country families and their children and continued support to over 50 families who have already lost their children.
Join Andrew, on a section of his paddle from the NSW / SA border to the Murray Mouth, raising funds to support Paediatric Palliative Care at the WomenÕs & ChildrenÕs Hospital, Adelaide
You can also keep tabs on Andew's progress by vivitng the WomenÕs & ChildrenÕs Hospital website from the link at the bottom of the page.
If you are unable to paddle but wish to make a donation please contact Andrew Stace on 0403 307 859 or email@example.com
Entry fee/donation $20 (per paddle)
Saturday July 9th to Sunday July 10th 2005
Blanchetown to Swan Reach Ð 28km then Swan Reach to Nildottie Ð 22km.
Departs Blanchetown and Swan Reach at 10:30am
Saturday July 16th 2005
Goolwa to Mundoo Channel (Via Goolwa Barrage).
BBQ lunch at 11:30am, Departs Goolwa at 1:00pm.
How to Enter:- Step 1: Complete the accompanying entry form by Friday June 17th
Step 2: Post to 3 Edsall Street, Norwood, SA 5067
Late entries up to June 27th will be charged $25 to paddle
How to Pay:- You can either pay by Money order, Cash, Cheque (made out to the WomenÕs and ChildrenÕs Hospital Foundation), or by completing the Credit Card details on the entry form. Please send payment with your entry form.
How to Order a Polo Shirt:- Step 1: Circle ÒYesÓ on the entry form
Step 2: Tick appropriate size of shirt for you
Step 3: Make sure that you pay for the shirt with your entry
Step 4: Orders need to be made by Friday June 17th
Non paddlers are invited to order Polo Shirts to show support for this cause
Contact Andrew on 0403 307 859 for collection or send a cheque to:
ÒWomenÕs and ChildrenÕs Hospital FoundationÓ
WomenÕs and ChildrenÕs Hospital Foundation,
Locked Bag, WCH North Adelaide, 5006
Quote ÒPaddle for Paediatric Palliative CareÓ
All Donations over $2.00 are tax deductible
Want to know more?
Contact Andrew on 0403 307 859 or firstname.lastname@example.org
Follow Andew's progress at the WCH website….. www.wch.sa.gov.au/support/community/index.html